Patients' Stories

First of all let me thank all the authors who despite their suffering from vasculitis wrote their story. In letting me publish their individual stories especially newly diagnosed patients will see that despite the rareness of this disease they are not alone. Others have travelled the same paths, have faced similar problems..

Some stories offer ideas for therapies or good hints as to how overcome some of the obstacles of vasculitis. However helpful these ideas may seem, please be aware that I publish the stories unedited and without any comment. No hint, no idea, however promising it might seem, should be taken as a solution. Take it as an idea you can discuss with your doctor. Please don't change any of your therapy without having consulted your doctor first.

Little Soldier
Giant Cell Arteritis
Microscopic Polyangitis
Barbara's Story on Microscopic PAN
Polyarteritis Nodosa
Mirta's Story on Polyarteritis Nodosa
Meranda's Story
Jessica's story
Heath's Story
Eric's Story
Fred's Story
Bob's Story
Mercy's Story
Florence's Story
Steve's Story
Leukocytoclastic Vasculitis
Angelika tells her Vasculitis-Story
Cerebral Vasculitis
Anna's report on her life with vasculitis
Almost a Miracle!
Granulomatosis with Polyangiitis (formerly Morbus Wegener)
Allison's Story
Avoiding the Wrong Paths
The Long Way to Arava
Morbus Wegener

updated 02.12.2014