On Tuesday, May 4th the Pittsburgh Post-Gazette published an article on the PAN-Network of Ed Becker. It is the policy of the Pittsburgh Post-Gazette not to allow the posting of their material on any web site but their own. So here are a few quotes, the full article can be reached at:
"Turning a personal tragedy into public good
Son marvels at reach of a Web site he created following the death of his mother from a baffling disease called PAN"
"Early in 1998, Florence Becker of Valencia, suddenly became ill. She had developed a low-grade fever, intense headaches, frequent nosebleeds and was extremely tired."
[...]Her son, Ed, created a Web site [...]can be reached at www.pansupport.org. [...]
Soon doctors with an interest in PAN were tapping in and chatting with patients[...]
Last month, the network commemorated its fifth year with the release of a resource CD, "Living With PAN 2004: An Internet Guide to PAN and Autoimmune Disease."
The CD is a collaboration between Becker and Birgit Wiedenmann-Naujoks, a multimedia developer in Hamburg, Germany, who joined the network after her mother was diagnosed with PAN. She's also launched a German mirror site to Becker's. [...]"
Please read the full article at: